Our Story
UK Foundation for MDNG was established to address the urgent and often overlooked needs of individuals living with muscular dystrophy in Nigeria. Muscular dystrophy is a group of progressive, life-limiting conditions that cause muscle weakness and loss of mobility, often affecting breathing, heart function, and overall quality of life.
In many parts of Nigeria, access to early diagnosis, specialist healthcare, treatment, rehabilitation services, and essential assistive equipment remains extremely limited due to financial constraints. Affected families frequently face significant challenges, including delayed diagnosis, lack of medical support, financial hardship, and limited awareness about the condition. These barriers can lead to preventable complications, social exclusion, and reduced opportunities for education, employment, and independent living.
The Foundation bridges these gaps through partnerships with healthcare professionals, educational institutions, community organizations, and advocacy groups, to improve access to care, promote early diagnosis, provide mobility aids and essential support services, and raise public awareness about muscular dystrophy.
Our work focuses on improving health outcomes, empowering individuals and families, and promoting inclusive living. By supporting practical assistance, education, research partnerships, and advocacy initiatives, we aim to help affected individuals live more independent, dignified, and fulfilling lives.
Our Charitable Purposes
UK Foundation for Muscular Dystrophy Nigeria works to deliver public benefit by supporting individuals affected by muscular dystrophy and improving understanding of the condition. Our work is guided by three key charitable purposes with public benefit including:
The relief of those in need by reason of disability or ill-health by providing practical, emotional, financial and advocacy support to individuals affected by Muscular dystrophy and their family and carer’s in Nigeria.
The advancement of health or saving of lives by funding research into diagnosis, prevention and treatment of muscular dystrophies, as well as building collaborative partnership with researchers, institutions and organizations to advance medical knowledge, improve access to care and MD treatment.
The advancement of education by raising awareness to educate the public about the muscular dystrophy, encourage early intervention and treatment. This will help to increase knowledge of the condition, develop skills for managing the condition, and foster public understanding, reducing stigma associated with the condition.
Mission, Vision, Values and Impact
Our Mission
Our mission is to improve the lives of individuals affected by muscular dystrophy in Nigeria by providing practical support, promoting access to healthcare and assistive equipment, and raising awareness of the condition. We work to empower individuals and families, encourage early diagnosis and intervention, and support initiatives that improve care, inclusion, and long-term wellbeing for people living with muscular dystrophy.
Our Vision
Our vision is a future where individuals living with muscular dystrophy in Nigeria have access to the healthcare, support services, and opportunities they need to live independent, dignified, and fulfilling lives.
We strive for a society where muscular dystrophy is better understood, where stigma and social barriers are reduced, and where individuals affected by the condition are fully included in their communities, education systems, and workplaces.
Our Values
Compassion: We are committed to supporting individuals and families affected by muscular dystrophy with empathy, dignity, and respect.
Inclusion: We promote equal opportunities and work to ensure that people living with muscular dystrophy are included in all areas of society.
Integrity: We operate transparently and responsibly, ensuring that all resources are used to deliver the greatest possible benefit to those we serve.
Collaboration: We believe meaningful change is achieved through partnerships with healthcare professionals, organisations, communities, and supporters.
Impact: We focus on initiatives that create real and lasting improvements in the lives of people living with muscular dystrophy.
Our Impact & Partnerships
The UK Foundation for Muscular Dystrophy Nigeria (MDNG) works in partnership with healthcare professionals, researchers, educational institutions, and community organisations to improve the lives of individuals and families affected by muscular dystrophy in Nigeria.
Through collaboration and strategic partnerships, the Foundation supports initiatives that raise awareness, improve access to care, and advance knowledge and health outcomes related to muscular dystrophy.
Our partnership initiatives include:
- Community awareness campaigns and outreach programmes to improve understanding of muscular dystrophy and encourage early diagnosis
- Educational seminars, workshops, and professional training for healthcare professionals, caregivers, and community leaders
- Provision of mobility aids and assistive equipment to support independence and daily living
- Financial empowerment initiatives that support sustainable opportunities for individuals affected by muscular dystrophy
- Public engagement and advocacy activities that promote inclusion and reduce stigma
- Research collaborations and sponsored initiatives that contribute to advancing research and improving health outcomes for people living with muscular dystrophy in Nigeria
By working with trusted partners and supporters, the Foundation continues to expand its reach and strengthen its ability to deliver meaningful support, advance health, and improve the quality of life of individuals affected by muscular dystrophy.